Best. Year. Ever.

Oh, 2013, you were pretty amazing.

2013 started off with friends and me being super pregnant.  The house would decide to revolt against us, resulting in a roof leak, the power box crapping out, and last minute home improvement projects (which really needed to happen anyway). Thank goodness for awesome neighbors who are super handy fix-it-all’s!

My due date would come and go, and I was pretty sure that Izzy had made a fort in my womb. She would eventually make her appearance on her terms in her own time. The labor would be strong and steady, and mostly unmedicated. She arrived with a ferocious scream, and upon seeing her, finally knew what love truly was. We would spend the first week in the NICU and Specialty Care at Children’s, but leave with what amounted to a detailed instruction manual on how to care for a baby.

We learned what parenthood was, and that we were an amazing team, despite the stress that is fueled by exhaustion and learning how best to care for a tube fed baby.

On the fun side, 2013 would bring Izzy’s first camping trip at 2 months old, and then 2 more camp trips. Not bad for having to lug a feeding pump and an oxymeter along with us, in addition to my breast pump and all the related equipment. We would hit the road for short weekend adventures to the coast, to parks and in-city adventures.

It brought a start to my home business, Big Dill Pickles. continued to craft, making books, quilts, and baby clothes. I spent many amazing hours snuggling Izzy, writing, as well as publishing a blog post for Blogher.com.

We cooked many amazing meals, and hosted lovely dinner parties for friends.  Lastly, we paired up with a local (baby friendly!) brewery to host dinner parties, with the first one being a beer and bratwurst party for 100. 

On the work front, 2013 brought new work projects for me, long days and great new responsibilities, gaining a new team and letting go of the team I had worked with for a few years. I would start with a research group, and eventually work on dismantling a bariatric program, and helping to transition another program into my department. It was a year of change at my company!

Nick continued on at his catering company for the 6th year, cooking for many events, including events for local politicians, on up to someone at a big white house. He did an amazing job keeping me fed as well (I am pretty sure that in itself was a full time job, too).  Nick worked on multiple house projects, played harmonica and guitar for Izzy to keep her happy. He spends his nights teaching Izzy Spanish, a love of history and geography, and how to play soccer (she’s still learning that one!). 

So what’s on tap for 2014?
The big thing is Izzy’s upcoming surgery in a few weeks to close up her pallet. In theory, she should be able to start eating on her own. We’ll be working with the specialists to teach her to eat and make sure that we get ahead of any potential challenges to speech. 
I’ll be attending a food bloggers conference, and plan to do more with my art’s and crafts, and will put more energy into canning and pickling. We plan to work with the local brewery, Burdick Brewing (do check them out!), to do more food related events. I’m also looking forward to more events with South Park Arts.
We have some fun trips planned as well, the exciting one is a trip to Yosemite late spring/early summer, I used to go every summer when I lived in California, and Nick hasn’t been. I can’t wait to take the two of them on hikes and show them the spots that I loved so much. 
This year will be about going on adventures and exploring with Isabella and Nick and just having fun. 2013 was an amazing year, and I can’t wait to see all that 2014 has to offer!
What are your hopes for 2014?
All our best,
Raina, Nick and Isabella Grace. 

Tiny Gets a Tube

This week Izzy went in for surgery for her G-tube. After almost 8 months of having an ng-tube, we were ready for a change-the idea of something that wouldn’t require replacing every day sounded amazing. The surgery went well, and quickly, requiring only an overnight stay. The tube site looked good, and only leaked a little. She was able to take her feeds, but ended up throwing up at the last one. We all chalked it up to her tummy not being used to eating the volume after so many hours of not having anything in it.

Thursday and Friday, she continued to throw up and we found her tube site leaking more. By Friday afternoon, the site was leaking so much, anything we put in would run out of her and soak her outfits. We ended up going to the emergency room after her 8th change of clothes in almost as many hours.

That was Friday, and here we are Monday, still in the hospital. We still don’t have answers for why she is leaking, but at least the vomiting has stopped. The nursing staff has been amazing, the surgery teams…well…lacking at times, but we’re finally getting people to figure out what is happening to her and why. Tests are being run, and we continue to find the best way to feed her. We try.

In the mean time, Nick and Izzy snuggle and we play and wait. Happily, there’s these amazing breakfast sandwiches that are only made from 1-4 am-we were happy to have those last night, between bouts of demanding to talk to someone about why things are wrong.

We remain positive, it’s hard sometimes, but we keep going. Here’s to getting out of here one of these days! In the mean time, we’re at least able to relax and hang out with each other.  To help pass the time, I brought my lap top, a cook book, cooking magazines, yarn and crotchet needles. One of these things should help pass the time!

How do you spend time when you’re stuck somewhere?

Best,
Raina

A Quick Adventure

It has been so gloriously sunny here, much longer than it normally is in Seattle. The days are still long, and we’re seeing temps in the 80’s and high 70’s. You can tell that fall is coming, but for now, summer is holding on with everything it has.

With Tiny’s surgery coming, I wanted to get her out of the house to play. I needed to step away from all of the cleaning and prep work to get into nature and see some sea critters.  We decided to go play in tide pools. We got there as the tide was starting to come back in, but we were able to get a good 45 minutes of play time. Izzy was more interested in the other kids, and the waves than the sea stars, but she played along while I climbed over rocks and plodded through seaweed beds.  There were so many sea stars, some bigger than my head, in a variety of colors, some slowly moving their suckers, trying to feel out where the water went.  It was a good way to get out and clear my mind and enjoy a misty morning.

I’m looking forward to more trips to local tidepools!

Get Crafty

Lately I have been trying to keep balance between work and mommy-hood with some me time. I had started a scrapbook for Tiny, but stalled out. About a week ago, I took a book making class, and I have definitely felt more excited about paper crafts again. Things I have learned…when you’re tired, your grammar goes out the window, so you’ll see a typo in one of the pics. Just ignore, pretend it’s perfect 🙂

The first shots are of my original scrapbook pages, the next set is of the book I made in a class. I’ll post more pics of other projects I am working on, but for now, enjoy!

And I can’t believe I forgot…my old photos are hanging up! I’m showing a few shots at the T-117 offices for the Port of Seattle. South Park Arts is working with them to showcase local artists while they are doing clean up of the Duwamish River.

That’s it! It’s been a lot of fun doing crafts and hanging out with friends to find that old me, new me balance. Here’s to more days of crafty goodness!

Raina

6 Months!

New Baby!
1 Month!
2 Months! 
3 Months!
4 Months!

5 Months! 

6 Months
Tiny Beast. My Goo. Stinky. Izzy.
I have dozens of names for her. I sing them in sunbeams, I whisper them at bed time, I use them in the stories I tell her.
6 glorious months have gone by since Isabella came into my life. Some days hard, all days amazing. I am truly lucky to have her. She makes me laugh, she utterly confuses and amazes me at the same time, and I wouldn’t have it any other way.
Every breath, every moment, every decision I have made in my life has been for her.
Happiest of Half Birthdays, my little love. 
Raina

On The Road Again

This past weekend we hit the road to Mt Rainier to do some tent camping with Izzy. We also decided to try to wean her off of her feeding tube. If you’re going to try something new, it should at least be done in a new environment while having fun.

The weather was amazing, and Izzy did really well. She loved the tent, trees, and critters. Our spot was also next to the river and away from other campers, so she could scream her fool head off during bottle feeds without really disturbing other campers (we hope).

The trip was over way too fast, and it was really nice to know for sure that we could camp with her. I also found that the car was pretty comfy for pumping, too.

On our way home we took a detour to Yakima for cherries and beer, and found a great little restaurant, Barrel House (http://www.barrelhouse.biz/5601.html). This place was seriously amazing-I had the portabella blue burger – which you can order up to 2 lbs big!  The cole slaw was awesome, and the beer and wine were all local.

We’re home now, and the wean has been a mixed bag-the kid has a pretty strong aversion (how does my kid not love food?!), but we’re working on it.

This week I’ll be wrapping up my vacation by making jam with the cherries from Yakima, watching fireworks with friends, and celebrating my 35th birthday (eep!). I’m also working on a shadowbox for her nursery too. Not a bad way to spend a week!

Here’s to you all!
Raina

One Year

Today, it’s been a year since my Dad died. Friday marks the day that he was found. I can tell you exactly what I was doing when I knew he had passed away.

I was at work, making Coach calls during a quit tobacco campaign at work. It was a rare time for me to be on the phones. My cell phone rang, it was my Grandpa, when I didn’t answer my desk phone rang. Also my Grandpa. As soon as I was off the work call, I called my Grandpa back. I remember sending a text to my best friend that said, “I think my Dad is dead”.

I had been waiting for that call for years. He had been in and out of mental hospitals battling PTSD for so long. He was diagnosed when I was in high school, and had been going downhill for the 20 years since then. It had really only been a matter of time, as he had tried so many times before.

The days that followed hearing that my Dad had taken his life went by in a blur. I broke down only after my Grandparents left, after I had sent a text to my friends and after I emailed work. I remember wiping away the tears after realizing that I needed to tell my mom. I remember that things had to be done. I broke down in spurts. I was newly pregnant, and ended up hiding in bed for a little while.  It was the start of over a month worth of work on his apartment. It was my heart breaking, and finding a way to be strong for my mom, myself and my unborn child. It was me realizing that I had an amazing man in Nick who I could lean on. You can read more about everything that happened in the main post and 4 prior posts here.

I still feel guilty, I still feel anger, I still miss him more than anything in the world. I am still so glad he isn’t in pain, that he isn’t haunted by the lives he couldn’t save during his military career as a medic.  He went out on so many plane crashes and did his best to help people, but in the end he couldn’t help himself.  I wish that I could have one more day with him, to have his fatherly counsel, to hear his voice that wasn’t in a voice mail.

People ask me what they can do.  You can advocate for change to the status of mental health care. You can support Veteran’s Organizations, you can vote for politicians and policies that stop the revolving door of mental health care. But more than anything, you can reach out and offer to help someone who you worry about. You can not shy away from the person who has mental illness. Be their advocate. Champion for the care of the disabled.

In short, don’t let people with mental illness suffer alone.

This week I’ll be celebrating all that is my Daddy. This means German beer, bratwursts, liver wurst, grilled meats and salmon. I’ll be planting trees, roses, and other plants in his memory, and hanging new bird feeders; this was what he loved.

I’ll be taking some time this weekend to spread some of his ashes at Mt. Rainier.

I’ll also be celebrating all of my good memories of him, and building new ones with his Granddaughter.

Here’s to you Daddy, I miss you.

The right way

Tiny Beast has taught me a lot in her short time being alive. The biggest lesson? Take all of your plans and chuck them out the window; you won’t need them anyway.

I didn’t plan to have a special needs child. I didn’t plan to stay in Children’s for a week after she was born. I planned to breast feed.  None of that happened, and I have to say I am happier and probably all the better for it.  I’m ok with the amount of change that came with my day to day life. I adapt well at work, it was about time I figured out how to do it at home, too. 
I just finished reading a blog post (located here) about a gal who exclusively pumps. 
Holy crap. It’s not just me. 
I know, I know. I’m not special. If I have the issue there’s bound to be someone else with this issue, too. Right??? Tell that to the gal sitting on the couch at 3 am on her second pump of the night, who is crying cause she just pumped blood, or is worried that the amount of milk isn’t going to be enough to provide a full feed, or is trying to figure out if she washed the other pump equipment earlier in the day, so she can just go right back to sleep.
It’s rough some days, I feel like I am chained to the pump. Every two to four hours I pump, and then I try to get the baby to eat. Whatever she doesn’t eat via bottle, she gets via a tube. By the time that is all done, it’s just about time to get to pumping again. Because she works so hard to eat, she has to take in more calories to maintain her weight, which means more milk, which means more pumping. One day I pumped for 5 hours. It’s hard explaining this to people. For a while I kept hearing people ask why I didn’t keep trying to breast feed all of the time, or why I was busy, and so I would gently explain Isabella’s condition, or my pumping schedule. It was hard having to explain myself and justify what I was doing. You always hear that “breast is best”, and if you’re not doing it that way, something must be wrong with you.
When I first had Isabella, I was crushed when I found out that I wouldn’t be able to breast feed. I kept thinking about all that would go wrong-I wouldn’t be able to bond with her, my milk won’t come in right, she won’t…Blah. Every negative thought that I could have had about myself in the first few days popped up. 
Luckily, I had a supportive partner, and a great medical team at Children’s who was there to help cheer me on. I started out hand expressing and using the pump, using a tiny syringe to collect the droplets of colostrum. Then, a bigger syringe. Then my milk was coming in enough that I started to fill up the little containers. I was proud of myself and my little container that was filled up to 80 mls! The day that I pumped almost 200 mls in one session I did a giant happy dance. 
For the first few days of her tiny life, Isabella was solely tube fed. She couldn’t take a bottle or do breast feeding.  She couldn’t get suction and would usually get frustrated and scream. We would both end up tired and sad.  It still stung that I wouldn’t be able to breast feed her.  Eventually, our specialist found the right bottle and a valve that prevented milk from going back into the bottle when she ate. I cried the first time she took a bottle of my milk. The video of me feeding her still makes me cry. From that moment I started to feel better about not breast feeding. Getting her off the tube became the goal. 
I can’t remember who it was, probably Nick, who had an awesome reframe of my situation. No, I am not breastfeeding, but at least I know exactly how much milk I am giving to Isabella. There’s no guessing game, no worry about weight loss after birth. I was given a target amount to pump, I pumped it, and I fed it to her. That helped take off some of the pressure.
I was doing great-pumping a ton, making more milk than I knew what to do with. Life was good, and I was feeling a little better about not breast feeding.  Then I got my first round of mastitis. Holy crap, that is no joke! Mom’s who EP are at higher risk of blocked ducts and in turn mastitis-the pump just isn’t as efficient as a baby.  You don’t get this info in class. You get it from the lactation consultant you see when your boob is swollen up the size of small country, and not in the sexy way, but more in the Quasimodo lumpy way.  
I not only felt like crap physically, mentally I was upset-how could I have let this happen. If I can’t take care of my own body, how am I supposed to take care of a kid? All my negative (and pretty damn irrational) thoughts came back. Unfortunately, so did the mastitis…in both breasts.
Son of a…
I was in pain and on antibiotics, I smelled funny, my kid smelled funny and pooped way more than I was used to.  To top it off, my milk production was reduced.  Fail.
That was a few weeks ago. I just keep going at it, figuring it will all work out. It always does. My milk production still isn’t what it was, but I’m still using my support system, posting my thoughts and experiences on facebook, adding when I find other posts from women who are in the same non-traditional boat as I am. It feels good.  I have those days where I want to say screw it, and just go to formula. I want to be able to sleep during the night, instead of being up every few hours and being tied to the pump. 
But for now, it works. The other big lesson that Isabella has taught me? It’s no longer about me. It’s all about her. She likes breast milk way more than formula and she farts way less with the breast milk, so we all win there.  A well fed, less farty baby equals a happy momma and poppa. 
In closing this post-Motherhood is hard. What works for some, just won’t work for others. It’s long hours and no pay. It’s a crying baby, and feelings of happiness and frustrations that run deep. I am so thankful for the experiences of those around me, and those that I am just meeting. It lets me know I am not alone. Every NICU parent, every momma whose delivery wasn’t the dream that they had, and every momma that knows the frustration of feeling like a failure over the “dream” not going to plan, it lets me know I am not alone. 
Here’s to finding what works, what doesn’t, and just being happy. Here’s to no judgement, and being ok with the new version of your dream. Whatever that may be; it’s going to be the right way.
Raina

On The Road…To Change

The other night I went to an awesome event through an organization called Zaarly. It was a group of local venders who started their own businesses and followed their passion. In talking with one gal, she gestured to Tiny Beast, and noted, “This is why I do this. I wanted to spend more time with my little one”. It struck a chord with me.

I love my normal job, and I don’t want to let that go. I help manage a program that helps people lose weight, quit smoking, increase their physical activity and manage their stress. It’s an awesome program that combines wellness with realistic behavior change. My employees are awesome, and my peers are amazing. I can’t see myself leaving that any time soon.

Having Tiny Beast made me want to do more than just a 9-5. I want to create more, and show her the world of cooking and crafts. I want to have the option of doing something creative that is profitable. I think I also miss doing art events and shows.  I love providing feedback on databases and writing trainings, but I can’t put glitter on them (hmmm…maybe I just thought of a new training method).

I have the resources-I have an entire craft studio that is floor to ceiling, wall to wall goodies just waiting for me to make something. I have the ability to whip up yummy dishes, and can come up with recipes pretty quickly. I also make delicious pickles. Seriously. Those things are crazy good.

All this to say, I am venturing out to start my own tiny business-selling my pickles and jams. It’s definitely not going to be anything that allows me to get wealthy, but it should be enough for some extra spending cash, and help to keep me doing creative things-fun craft classes anyone?  It’s also great as it’s something I can do on the weekends and after work, with a kid strapped to me. I already know where to get local produce to support local farmers. I can give back and do something I like.

I am still working on the business model, logo and all the things that go in to taking a hobby into something bigger. I have been lucky to get feedback on my products from friends and family, so I know what I need to change (luckily it’s not much). Who knows if it will actually succeed, but for now, the idea makes me super happy.

It also gets me closer to my ultimate goal of having a Bed and Breakfast. Ok, so it’s a long way to that goal, but one step at a time.

For those of you who have taken a big leap and done something for yourself, or started your own business; what helped you to do that? What advice would you give? And how has it been?

Yours in crafty goodness!
Raina

Tiny Beast Hits the Road

We had a camping road trip!  Okay, so it was an hour and a half away and in a cabin, but the cabin didn’t have a bathroom and that’s like camping, right?

Right.
Since Tiny Beast is on an oxymeter when she sleeps, and uses a pump for feedings, we needed to stay somewhere with power. I didn’t want to stay in a hotel, so we opted for a cabin at Cama Beach on Camano Island. I love this place-it’s quiet, there’s no cars allowed, it’s right on the water, too. Seriously-if you’re skilled, you can spit on the water from your front porch. If you’re not, well, then you just drooled on yourself.

The first night was lovely-so quiet, with just a couple of fellow vacationers. We unpacked and sat at the table in front of our cabin with a glass of wine and just relaxed. It was amazing. We woke Tiny Beast up and had her out of her car seat. She didn’t seem amused…
That night, we slept pretty well-a rarity for us lately. During pumping sessions, I was able to look outside and catch glimpses of critters on the water in the moonlight. The next morning, we watch seals and otters play in the water, and eagles soar overhead. It was lovely!  We ventured out to find wine tasting, only to find that most small businesses that we would want to visit had closed. We spent much of the day driving around aimlessly. Had we not done that, I would never have seen the awesome collection of Beyonce’s-not sure why a giant metal rooster thing is called Beyonce? Read this.
Once we got back to the cabin, we found that dozens of screaming children had come to our peaceful resort. There may have been hundreds, if not thousands of kids based on the amount of noise. Nick assures me it was less than 50.  We made dinner and had a happy hour by the water, hoping that eventually the kids would simmer down. 

We would spend the night trying to figure out why they were sneaking around like crappy ninjas, and asking them to shut up (initially, nicely). They would stop screaming at 3 am, only to start up again at 5:30.  Down side? We didn’t sleep. Upside? The park staff felt so bad, that they refunded our payment for both nights. That was awesome, and super appreciated. 
Since the hordes of screaming children had no intention of stopping, we decided to head to the next park-Camano Island State Park and then slowly made our way home. 

It was a great first vacation with Tiny Beast, and it was great to find out that we could actually get out of the house and on the road. Her food pump has a battery back-up, and we were able to use the car power adapter for my pump. Sure it takes a little more planning, but you can’t beat a good family outing and getting to see your kiddo take in new sights. Not bad at all. 
Now, to find more baby friendly places so I can keep this Tiny Beast on the road with me!
Raina